🎙️We are pleased to share that the infoday “ACM from the patients’ perspective” was successfully held on November 26th!
The event provided an important moment of awareness-raising on arrhythmogenic cardiomyopathy (ACM) and the key role of #PatientsAssociations.
👥 Ruth Biller, præsident for #ARVC-Selbsthilfe, opened the session with an overview of ACM and of her organisation’s mission and activities.
🧬 Alessandra Rampazzo, PI of the IMPACT EU-projekt, presented the project’s objectives and the achievements reached so far.
⭐ Maurizio Fabbri, formand for La Stella di Lorenzo APS, shared the role of his association and their involvement in the #BeatTheBeat project.
💬 Three members from the two associations also contributed with personal insights, sharing their personal experience with ACM and the importance of patient-driven perspectives in research and awareness.
The event concluded with an engaging open discussion among speakers and participants.
🙏 A huge thank you to all speakers and to our audience!
Stay tuned for upcoming infodays and webinars organised within the IMPACT EU-projekt!
#ACM #Arrytmogen kardiomyopati #PatientEngagement #PatientsAdvocacyGroups #IMPACT-projektet #Horisont Europa #BeatTheBeat #PatientAssociations #Awareness #Webinar #Infoday
Alessandra Rampazzo, Università degli Studi di Padova, DiBio – Dipartimento di Biologia – UNIPD, Ruth Biller, Maurizio Fabbri, La Stella di Lorenzo APS, Irene Ferri, Emanuele Melfitani, Francesco Tesoro, Consorzio Italbiotec
🔴 Here’s the recording of the webinar:
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