{"id":3978,"date":"2025-10-22T10:36:48","date_gmt":"2025-10-22T08:36:48","guid":{"rendered":"https:\/\/impact-acmproject.eu\/?p=3978"},"modified":"2025-10-22T10:36:48","modified_gmt":"2025-10-22T08:36:48","slug":"%f0%9f%93%a2-upcoming-webinar-acm-from-the-patients-perspective","status":"publish","type":"post","link":"https:\/\/impact-acmproject.eu\/sl\/%f0%9f%93%a2-upcoming-webinar-acm-from-the-patients-perspective\/","title":{"rendered":"\ud83d\udce2 Prihodnji spletni seminar | ACM z vidika pacientov"},"content":{"rendered":"

Prihranite datum!<\/strong><\/p>\n

\ud83d\udcc5 Sreda, 26. november 2025 | 05:00 \u2013 06:30 | Online, Zoom<\/strong><\/p>\n

\"\"<\/p>\n

Veseli nas, da lahko napovemo prihodnji spletni seminar \u201eACM z vidika pacientov<\/strong>\u201c, ki jo je organizirala Projekt IMPACT EU<\/span><\/a> Osredoto\u010dena je na vklju\u010devanje zdru\u017eenj bolnikov v aritmogeno kardiomiopatijo (ACM)<\/strong> ter o pomenu njihovega sodelovanja z znanstveno skupnostjo pri ozave\u0161\u010danju in podpiranju pacientov in dru\u017ein.<\/p>\n

Sestanek bo vklju\u010deval pregled projekta, ki ga je predstavil prof. dr. Alessandra Rampazzo<\/a><\/strong> iz\u00a0Universit\u00e0 degli Studi di Padova<\/a>, kdo bo ilustriral U\u010dinek <\/span><\/a>cilji in glavni rezultati, ki so bili doslej dose\u017eeni.<\/p>\n

V pogovoru bo sodeloval dr. Ruth Biller<\/a>, predsednik ARVC-Selbsthilfe<\/strong>, nem\u0161ka neprofitna zagovorni\u0161ka skupina pacientov, ki posameznikom in dru\u017einam z ACM zagotavlja informacije in podporo skupnosti, ter Maurizio Fabbri<\/a>, predsednik La Stella di Lorenzo<\/a>, italijanska organizacija, ki se ukvarja z ozave\u0161\u010danjem in podpiranjem dru\u017ein s sr\u010dnimi obolenji.<\/p>\n

Obe zdru\u017eenji bosta delili svoje poslanstvo, glavne dejavnosti in poglede na sodelovanje med pacienti in raziskovalci, zgodnje odkrivanje, prepre\u010devanje in zagovorni\u0161tvo pri povezovanju znanosti in dru\u017ebe.<\/p>\n

Dogodek bo vklju\u010deval tudi pri\u010devanja iz bolniki<\/strong>, ki ponujajo osebne izku\u0161nje<\/strong> o vsakdanjem \u017eivljenju z ACM in prednostnih nalogah za prihodnje raziskave.<\/p>\n

Ta spletni seminar je prilo\u017enost za povezovanje raziskav in izku\u0161enj pacientov, spodbujanje dialoga in skupne zavezanosti k izbolj\u0161anju oskrbe in kakovosti \u017eivljenja!<\/p>\n

Spletni seminar bo potekal v angle\u0161\u010dini<\/strong>.<\/p>\n

\ud83d\udd17 Kliknite tukaj, da se seznanite z dnevnim redom spletnega seminarja in se prijavite za sodelovanje na dogodku:
\n<\/strong>https:\/\/acm-from-patients-perspective.eventbrite.it<\/a>.<\/p>\n

Ne zamudite prilo\u017enosti za sodelovanje!<\/p>\n

#<\/span>Projekt IMPACT<\/a> #<\/span>Spletni seminar <\/a>#<\/span>ACM<\/a> #<\/span>Sodelovanje pacientov<\/a> #<\/span>Zagovorni\u0161tvoPacientiSkupine<\/a> #<\/span>Raziskave<\/a> #<\/span>Zdravstveno varstvo<\/a><\/p>\n

Alessandra Rampazzo<\/a>, Universit\u00e0 degli Studi di Padova<\/a>, DiBio \u2013 Dipartimento di Biologia \u2013 Universit\u00e0 di Padova<\/a>, Ruth Biller<\/a>, La Stella di Lorenzo APS<\/a>, Consorzio Italbiotec<\/a>, Irene Ferri<\/a>, Francesco Tesoro<\/a>, Emanuele Melfitani<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Prihranite datum! \ud83d\udcc5 Sreda, 26. november 2025 | 05:00 \u2013 06:30 | Online, Zoom Z veseljem napovedujemo prihodnji spletni seminar \u201eACM z vidika pacientov\u201c, ki ga organizira projekt IMPACT EU in je bil osredoto\u010den na sodelovanje zdru\u017eenj bolnikov pri aritmogeni kardiomiopatiji (ACM) in na pomen njihovega sodelovanja\u2026<\/p>","protected":false},"author":3,"featured_media":3979,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[37],"class_list":["post-3978","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","tag-webinar"],"_links":{"self":[{"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/posts\/3978","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/comments?post=3978"}],"version-history":[{"count":1,"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/posts\/3978\/revisions"}],"predecessor-version":[{"id":3980,"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/posts\/3978\/revisions\/3980"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/media\/3979"}],"wp:attachment":[{"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/media?parent=3978"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/categories?post=3978"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/sl\/wp-json\/wp\/v2\/tags?post=3978"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}