{"id":4002,"date":"2025-11-27T12:13:08","date_gmt":"2025-11-27T11:13:08","guid":{"rendered":"https:\/\/impact-acmproject.eu\/?p=4002"},"modified":"2025-11-27T12:18:22","modified_gmt":"2025-11-27T11:18:22","slug":"%e2%9c%94-high-participation-in-the-impact-infoday-for-patients-acm-from-the-patients-perspective","status":"publish","type":"post","link":"https:\/\/impact-acmproject.eu\/sk\/%e2%9c%94-high-participation-in-the-impact-infoday-for-patients-acm-from-the-patients-perspective\/","title":{"rendered":"\u2714 Vysok\u00e1 \u00fa\u010das\u0165 na informa\u010dnom dni IMPACT pre pacientov | ACM z poh\u013eadu pacientov"},"content":{"rendered":"

\ud83c\udf99\u016aS pote\u0161en\u00edm oznamujeme, \u017ee informa\u010dn\u00fd de\u0148 \u201eACM z poh\u013eadu pacientov\u201c sa \u00faspe\u0161ne konal 26. novembra!<\/p>\n

Podujatie bolo d\u00f4le\u017eit\u00fdm momentom zvy\u0161ovania povedomia o arytmog\u00e9nnej kardiomyopatii (ACM) a k\u013e\u00fa\u010dovej \u00falohe #PacientiZdru\u017eenia<\/strong>.<\/p>\n

\ud83d\udc65 Ruth Biller<\/a>, predseda #ARVC<\/strong>-Selbsthilfe otvorila zasadnutie s preh\u013eadom ACM a poslania a \u010dinnost\u00ed jej organiz\u00e1cie.<\/p>\n

\ud83e\uddec Alessandra Rampazzo<\/a>, PI Projekt IMPACT EU<\/a>, predstavil ciele projektu a doteraj\u0161ie \u00faspechy.<\/p>\n

\u2b50 Maurizio Fabbri<\/a>, predseda La Stella di Lorenzo APS<\/a>, zdie\u013eal \u00falohu svojho zdru\u017eenia a ich zapojenie do #BeatTheBeat<\/strong> projekt.<\/p>\n

\ud83d\udcac Traja \u010dlenovia z t\u00fdchto dvoch zdru\u017een\u00ed tie\u017e prispeli osobn\u00fdmi poznatkami, zdie\u013eali svoje osobn\u00e9 sk\u00fasenosti s ACM a d\u00f4le\u017eitos\u0165 perspekt\u00edv orientovan\u00fdch na pacienta vo v\u00fdskume a informovanosti.<\/p>\n

Podujatie sa skon\u010dilo p\u00fatavou otvorenou diskusiou medzi re\u010dn\u00edkmi a \u00fa\u010dastn\u00edkmi.<\/p>\n

\ud83d\ude4f Obrovsk\u00e9 po\u010fakovanie v\u0161etk\u00fdm re\u010dn\u00edkom a n\u00e1\u0161mu publiku!<\/p>\n

Zosta\u0148te naladen\u00ed na nadch\u00e1dzaj\u00face informa\u010dn\u00e9 dni a webin\u00e1re organizovan\u00e9 v r\u00e1mci Projekt IMPACT EU<\/a>!<\/p>\n

#ACM<\/strong> #arytmog\u00e9nnakardiomyopatia<\/strong> #Zapojenie pacientov<\/strong> #PacientiAdvocacySkupiny<\/strong> #IMPACTprojekt<\/strong> #Horizont Eur\u00f3pa<\/strong> #BeatTheBeat<\/strong> #Zdru\u017eenia pacientov<\/strong> #Informovanos\u0165<\/strong> #Webin\u00e1r<\/strong> #Informa\u010dn\u00fd de\u0148<\/strong><\/p>\n

Alessandra Rampazzo<\/a>, Universit\u00e0 degli Studi di Padova<\/a>, DiBio \u2013 Dipartimento di Biologia \u2013 UNIPD<\/a>, Ruth Biller<\/a>, Maurizio Fabbri<\/a>, La Stella di Lorenzo APS<\/a>, Irene Ferri<\/a>, Emanuele Melfitani<\/a>, Francesco Tesoro<\/a>, Consorzio Italbiotec<\/a><\/p>\n

\ud83d\udd34 Tu je z\u00e1znam webin\u00e1ra:<\/p>\n