{"id":3978,"date":"2025-10-22T10:36:48","date_gmt":"2025-10-22T08:36:48","guid":{"rendered":"https:\/\/impact-acmproject.eu\/?p=3978"},"modified":"2025-10-22T10:36:48","modified_gmt":"2025-10-22T08:36:48","slug":"%f0%9f%93%a2-upcoming-webinar-acm-from-the-patients-perspective","status":"publish","type":"post","link":"https:\/\/impact-acmproject.eu\/sk\/%f0%9f%93%a2-upcoming-webinar-acm-from-the-patients-perspective\/","title":{"rendered":"\ud83d\udce2 Nadch\u00e1dzaj\u00faci webin\u00e1r | ACM z poh\u013eadu pacientov"},"content":{"rendered":"

Zachr\u00e1\u0148te d\u00e1tum!<\/strong><\/p>\n

\ud83d\udcc5 streda 26. novembra 2025 | 05:00 \u2013 06:30 | Online, Zoom<\/strong><\/p>\n

\"\"<\/p>\n

S pote\u0161en\u00edm V\u00e1m oznamujeme nadch\u00e1dzaj\u00faci webin\u00e1r \u201eACM z poh\u013eadu pacientov<\/strong>, ktor\u00fa organizuje Projekt IMPACT EU<\/span><\/a> a zameral sa na zapojenie zdru\u017een\u00ed pacientov do arytmog\u00e9nnej kardiomyopatie (ACM)<\/strong> a o v\u00fdzname ich spolupr\u00e1ce s vedeckou komunitou pri zvy\u0161ovan\u00ed informovanosti a podpore pacientov a rod\u00edn.<\/p>\n

S\u00fa\u010das\u0165ou zasadnutia bude preh\u013ead projektu, ktor\u00fd predstavil prof. Alessandra Rampazzo<\/a><\/strong> od\u00a0Universit\u00e0 degli Studi di Padova<\/a>, ktor\u00fd bude ilustrova\u0165 VPLYV <\/span><\/a>ciele a hlavn\u00e9 v\u00fdsledky, ktor\u00e9 sa doteraz dosiahli.<\/p>\n

S\u00fa\u010das\u0165ou diskusie bude dr. Ruth Biller<\/a>, predseda ARVC-Selbsthilfe<\/strong>, nemeck\u00e1 neziskov\u00e1 skupina pacientov poskytuj\u00faca inform\u00e1cie a komunitn\u00fa podporu jednotlivcom a rodin\u00e1m s ACM, a Maurizio Fabbri<\/a>, predseda La Stella di Lorenzo<\/a>, talianska organiz\u00e1cia, ktor\u00e1 sa zaober\u00e1 zvy\u0161ovan\u00edm informovanosti a podporou rod\u00edn postihnut\u00fdch srdcov\u00fdmi ochoreniami.<\/p>\n

Obe zdru\u017eenia sa podelia o svoje poslanie, hlavn\u00e9 \u010dinnosti a perspekt\u00edvy v oblasti spolupr\u00e1ce medzi pacientmi a v\u00fdskumn\u00edkmi, v\u010dasnej diagnostiky, prevencie a presadzovania pri prep\u00e1jan\u00ed vedy a spolo\u010dnosti.<\/p>\n

S\u00fa\u010das\u0165ou podujatia bud\u00fa aj svedectv\u00e1 od pacienti<\/strong>, ktor\u00e1 pon\u00faka osobn\u00e9 sk\u00fasenosti<\/strong> o ka\u017edodennom \u017eivote s ACM a priorit\u00e1ch bud\u00faceho v\u00fdskumu.<\/p>\n

Tento webin\u00e1r predstavuje pr\u00edle\u017eitos\u0165 prepoji\u0165 v\u00fdskum a sk\u00fasenosti pacientov, podpori\u0165 dial\u00f3g a spolo\u010dn\u00fd z\u00e1v\u00e4zok zlep\u0161i\u0165 starostlivos\u0165 a kvalitu \u017eivota!<\/p>\n

Webin\u00e1r sa bude kona\u0165 v anglickom jazyku<\/strong>.<\/p>\n

\ud83d\udd17 Kliknite sem a objavte program webin\u00e1ra a zaregistrujte sa na \u00fa\u010das\u0165 na podujat\u00ed:
\n<\/strong>https:\/\/acm-from-patients-perspective.eventbrite.it<\/a>.<\/p>\n

Nenechajte si ujs\u0165 pr\u00edle\u017eitos\u0165 z\u00fa\u010dastni\u0165 sa!<\/p>\n

#<\/span>IMPACTprojekt<\/a> #<\/span>Webin\u00e1r <\/a>#<\/span>ACM<\/a> #<\/span>Zapojenie pacientov<\/a> #<\/span>AdvocacyPatientsSkupiny<\/a> #<\/span>V\u00fdskum<\/a> #<\/span>Zdravotn\u00e1 starostlivos\u0165<\/a><\/p>\n

Alessandra Rampazzo<\/a>, Universit\u00e0 degli Studi di Padova<\/a>, DiBio \u2013 Dipartimento di Biologia \u2013 Universit\u00e0 di Padova<\/a>, Ruth Biller<\/a>, La Stella di Lorenzo APS<\/a>, Consorzio Italbiotec<\/a>, Irene Ferri<\/a>, Francesco Tesoro<\/a>, Emanuele Melfitani<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Zachr\u00e1\u0148te d\u00e1tum! \ud83d\udcc5 streda, 26. novembra 2025 | 05:00 \u2013 06:30 | Online, Zoom S pote\u0161en\u00edm oznamujeme nadch\u00e1dzaj\u00faci webin\u00e1r \u201eACM z poh\u013eadu pacientov\u201c, ktor\u00fd organizuje projekt IMPACT EU a ktor\u00fd je zameran\u00fd na zapojenie zdru\u017een\u00ed pacientov do arytmog\u00e9nnej kardiomyopatie (ACM) a na v\u00fdznam ich spolupr\u00e1ce\u2026<\/p>","protected":false},"author":3,"featured_media":3979,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[37],"class_list":["post-3978","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","tag-webinar"],"_links":{"self":[{"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/posts\/3978","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/comments?post=3978"}],"version-history":[{"count":1,"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/posts\/3978\/revisions"}],"predecessor-version":[{"id":3980,"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/posts\/3978\/revisions\/3980"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/media\/3979"}],"wp:attachment":[{"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/media?parent=3978"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/categories?post=3978"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/sk\/wp-json\/wp\/v2\/tags?post=3978"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}