{"id":3978,"date":"2025-10-22T10:36:48","date_gmt":"2025-10-22T08:36:48","guid":{"rendered":"https:\/\/impact-acmproject.eu\/?p=3978"},"modified":"2025-10-22T10:36:48","modified_gmt":"2025-10-22T08:36:48","slug":"%f0%9f%93%a2-upcoming-webinar-acm-from-the-patients-perspective","status":"publish","type":"post","link":"https:\/\/impact-acmproject.eu\/ro\/%f0%9f%93%a2-upcoming-webinar-acm-from-the-patients-perspective\/","title":{"rendered":"\ud83d\udce2 Webinar viitor | ACM din perspectiva pacien\u021bilor"},"content":{"rendered":"

Salveaz\u0103 data!<\/strong><\/p>\n

\ud83d\udcc5 miercuri, 26 noiembrie 2025 | 05:00 PM \u2013 06:30 PM | Online, Zoom<\/strong><\/p>\n

\"\"<\/p>\n

Avem pl\u0103cerea de a anun\u021ba urm\u0103torul webinar\u201dACM din perspectiva pacien\u021bilor<\/strong>\u201d, organizat\u0103 de Proiectul IMPACT EU<\/span><\/a> \u0219i s-a concentrat asupra implicarea asocia\u021biilor de pacien\u021bi \u00een cardiomiopatia aritmogenic\u0103 (ACM)<\/strong> \u0219i cu privire la importan\u021ba colabor\u0103rii lor cu comunitatea \u0219tiin\u021bific\u0103 \u00een ceea ce prive\u0219te sensibilizarea \u0219i sprijinirea pacien\u021bilor \u0219i a familiilor.<\/p>\n

Sesiunea va include o prezentare general\u0103 a proiectului prezentat de prof. Alessandra Rampazzo<\/a><\/strong> din\u00a0Universit\u00e0 degli Studi di Padova<\/a>, care va ilustra IMPACT <\/span><\/a>obiectivele \u0219i principalele rezultate ob\u021binute p\u00e2n\u0103 \u00een prezent.<\/p>\n

Discu\u021bia va fi purtat\u0103 de dr. Ruth Biller<\/a>, pre\u0219edint\u0103 a ARVC-Selbsthilfe<\/strong>, un grup german non-profit de pacien\u021bi care ofer\u0103 informa\u021bii \u0219i sprijin comunitar persoanelor \u0219i familiilor cu ACM \u0219i Maurizio Fabbri<\/a>, pre\u0219edintele La Stella di Lorenzo<\/a>, o organiza\u021bie italian\u0103 implicat\u0103 \u00een sensibilizarea \u0219i sprijinirea familiilor afectate de afec\u021biuni cardiace.<\/p>\n

Ambele asocia\u021bii \u00ee\u0219i vor \u00eemp\u0103rt\u0103\u0219i misiunea, principalele activit\u0103\u021bi \u0219i perspective privind colaborarea dintre pacien\u021bi \u0219i cercet\u0103tori, diagnosticarea timpurie, prevenirea \u0219i promovarea leg\u0103turilor dintre \u0219tiin\u021b\u0103 \u0219i societate.<\/p>\n

Evenimentul va include, de asemenea, m\u0103rturii din pacien\u021bi<\/strong>, oferind experien\u021be personale<\/strong> privind via\u021ba de zi cu zi cu ACM \u0219i priorit\u0103\u021bile pentru cercetarea viitoare.<\/p>\n

Acest webinar reprezint\u0103 o oportunitate de a conecta cercetarea \u0219i experien\u021ba pacientului, promov\u00e2nd dialogul \u0219i un angajament comun pentru \u00eembun\u0103t\u0103\u021birea \u00eengrijirii \u0219i a calit\u0103\u021bii vie\u021bii!<\/p>\n

Webinarul va avea loc \u00een limba englez\u0103<\/strong>.<\/p>\n

\ud83d\udd17 Face\u021bi clic aici pentru a descoperi ordinea de zi a webinarului \u0219i \u00eenregistra\u021bi-v\u0103 pentru a participa la eveniment:
\n<\/strong>https:\/\/acm-from-patients-perspective.eventbrite.it<\/a>.<\/p>\n

Nu rata\u021bi ocazia de a participa!<\/p>\n

#<\/span>Proiectul IMPACT<\/a> #<\/span>Webinar <\/a>#<\/span>ACM<\/a> #<\/span>Implicarea pacientului<\/a> #<\/span>AdvocacyPacien\u021biGrupuri<\/a> #<\/span>Cercetare<\/a> #<\/span>Asisten\u021ba medical\u0103<\/a><\/p>\n

Alessandra Rampazzo<\/a>, Universit\u00e0 degli Studi di Padova<\/a>, DiBio \u2013 Dipartimento di Biologia \u2013 Universit\u00e0 di Padova<\/a>, Ruth Biller<\/a>, La Stella di Lorenzo APS<\/a>, Consorzio Italbiotec<\/a>, Irene Ferri<\/a>, Francesco Tesoro<\/a>, Emanuele Melfitani<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Salveaz\u0103 data! \ud83d\udcc5 Miercuri, 26 noiembrie 2025 | 05:00 PM \u2013 06:30 PM | Online, Zoom Avem pl\u0103cerea de a anun\u021ba viitorul webinar \u201eACM din perspectiva pacien\u021bilor\u201d, organizat de proiectul IMPACT EU \u0219i axat pe implicarea asocia\u021biilor de pacien\u021bi \u00een cardiomiopatia aritmogenic\u0103 (ACM) \u0219i pe importan\u021ba colabor\u0103rii acestora\u2026<\/p>","protected":false},"author":3,"featured_media":3979,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[37],"class_list":["post-3978","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","tag-webinar"],"_links":{"self":[{"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/posts\/3978","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/comments?post=3978"}],"version-history":[{"count":1,"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/posts\/3978\/revisions"}],"predecessor-version":[{"id":3980,"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/posts\/3978\/revisions\/3980"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/media\/3979"}],"wp:attachment":[{"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/media?parent=3978"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/categories?post=3978"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/ro\/wp-json\/wp\/v2\/tags?post=3978"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}