\ud83c\udf99\ufe0fEsam gandar\u012bti, ka inform\u0101cijas diena \u201cACM no pacientu viedok\u013ca\u201d veiksm\u012bgi notika 26. novembr\u012b!<\/p>\n
Pas\u0101kums bija svar\u012bgs br\u012bdis inform\u0113t\u012bbas palielin\u0101\u0161anai par aritmog\u0113no kardiomiop\u0101tiju (ACM) un galveno lomu #PatientsAssociations<\/strong>.<\/p>\n \ud83d\udc65 Ruth Biller<\/a>, priek\u0161s\u0113d\u0113t\u0101js #ARVC<\/strong>-Selbsthilfe atkl\u0101ja sesiju ar p\u0101rskatu par ACM un vi\u0146as organiz\u0101cijas misiju un darb\u012bb\u0101m.<\/p>\n \ud83e\uddec Alessandra Rampazzo<\/a>, PI no IMPACT ES projekts<\/a>, iepaz\u012bstin\u0101ja ar projekta m\u0113r\u0137iem un l\u012bdz \u0161im sasniegto.<\/p>\n \u2b50 Maurizio Fabbri<\/a>, priek\u0161s\u0113d\u0113t\u0101ja La Stella di Lorenzo APS<\/a>, dal\u012bj\u0101s vi\u0146a asoci\u0101cijas lom\u0101 un iesaist\u012bj\u0101s #BeatTheBeat<\/strong> projekts.<\/p>\n \ud83d\udcac Tr\u012bs locek\u013ci no ab\u0101m asoci\u0101cij\u0101m ar\u012b sniedza personisku ieskatu, daloties sav\u0101 person\u012bgaj\u0101 pieredz\u0113 ar ACM un pacientu virz\u012btu perspekt\u012bvu noz\u012bmi p\u0113tniec\u012bb\u0101 un inform\u0113t\u012bb\u0101.<\/p>\n Pas\u0101kums nosl\u0113dz\u0101s ar aizraujo\u0161u atkl\u0101tu diskusiju starp run\u0101t\u0101jiem un dal\u012bbniekiem.<\/p>\n \ud83d\ude4f Liels paldies visiem run\u0101t\u0101jiem un m\u016bsu auditorijai!<\/p>\n Sekojiet l\u012bdzi gaid\u0101maj\u0101m infodien\u0101m un t\u012bmek\u013csemin\u0101riem, kas tiks organiz\u0113ti IMPACT ES projekts<\/a>!<\/p>\n #ACM<\/strong> #Aritmogenit\u0101teKardiomiop\u0101tija<\/strong> #Pacientu iesaist\u012b\u0161ana<\/strong> #PacientiAdvokat\u016braGrupas<\/strong> #IMPACTprojekts<\/strong> #\u201cApv\u0101rsnis Eiropa\u201d<\/strong> #BeatTheBeat<\/strong> #Pacientu apvien\u012bbas<\/strong> #Inform\u0113t\u012bba<\/strong> #T\u012bmek\u013csemin\u0101rs<\/strong> #Inform\u0101cijas diena<\/strong><\/p>\n Alessandra Rampazzo<\/a>, Universit\u00e0 degli Studi di Padova<\/a>, DiBio \u2013 Dipartimento di Biologia \u2013 UNIPD<\/a>, Ruth Biller<\/a>, Maurizio Fabbri<\/a>, La Stella di Lorenzo APS<\/a>, Irene Ferri<\/a>, Emanuele Melfitani<\/a>, Francesco Tesoro<\/a>, Consorzio Italbiotec<\/a><\/p>\n \ud83d\udd34 \u0160eit ir t\u012bmek\u013csemin\u0101ra ieraksts:<\/p>\n