{"id":3978,"date":"2025-10-22T10:36:48","date_gmt":"2025-10-22T08:36:48","guid":{"rendered":"https:\/\/impact-acmproject.eu\/?p=3978"},"modified":"2025-10-22T10:36:48","modified_gmt":"2025-10-22T08:36:48","slug":"%f0%9f%93%a2-upcoming-webinar-acm-from-the-patients-perspective","status":"publish","type":"post","link":"https:\/\/impact-acmproject.eu\/hu\/%f0%9f%93%a2-upcoming-webinar-acm-from-the-patients-perspective\/","title":{"rendered":"a \ud83d\udce2 k\u00f6zelg\u0151 webin\u00e1riuma | ACM a betegek szemsz\u00f6g\u00e9b\u0151l"},"content":{"rendered":"

Mentsd meg a d\u00e1tumot!<\/strong><\/p>\n

\ud83d\udcc5 2025. november 26., szerda | 17:00\u201318:30 | Online, Zoom<\/strong><\/p>\n

\"\"<\/p>\n

\u00d6r\u00f6mmel jelentj\u00fck be a k\u00f6zelg\u0151 webin\u00e1riumot:ACM a betegek szemsz\u00f6g\u00e9b\u0151l<\/strong>\u201d, amelyet a k\u00f6vetkez\u0151 szervezet szervez: IMPACT EU-projekt<\/span><\/a> \u00e9s a k\u00f6vetkez\u0151kre \u00f6sszpontos\u00edtott: Betegt\u00e1rsul\u00e1sok bevon\u00e1sa az arrhythmogenic cardiomyopathi\u00e1ba (ACM)<\/strong> valamint a tudom\u00e1nyos k\u00f6z\u00f6ss\u00e9ggel val\u00f3 egy\u00fcttm\u0171k\u00f6d\u00e9s\u00fck fontoss\u00e1g\u00e1r\u00f3l a figyelemfelkelt\u00e9s, valamint a betegek \u00e9s a csal\u00e1dok t\u00e1mogat\u00e1sa ter\u00e9n.<\/p>\n

Az \u00fcl\u00e9s tartalmazni fogja egy \u00e1ttekint\u00e9st a projekt \u00e1ltal bemutatott Prof. Alessandra Rampazzo<\/a><\/strong> a k\u00f6vetkez\u0151b\u0151l:\u00a0Universit\u00e0 degli Studi di Padova<\/a>, Ki fogja illusztr\u00e1lni HAT\u00c1S <\/span><\/a>a c\u00e9lkit\u0171z\u00e9sek \u00e9s az eddig el\u00e9rt f\u0151bb eredm\u00e9nyek.<\/p>\n

A megbesz\u00e9l\u00e9sen r\u00e9szt vesz dr. Ruth Biller<\/a>, az al\u00e1bbi eln\u00f6k: ARVC-Selbsthilfe<\/strong>, egy n\u00e9met nonprofit \u00e9rdekk\u00e9pviseleti betegcsoport, amely t\u00e1j\u00e9koztat\u00e1st \u00e9s k\u00f6z\u00f6ss\u00e9gi t\u00e1mogat\u00e1st ny\u00fajt az ACM-ben szenved\u0151 egy\u00e9neknek \u00e9s csal\u00e1doknak, \u00e9s Maurizio Fabbri<\/a>, az Eur\u00f3pai Bizotts\u00e1g eln\u00f6ke La Stella di Lorenzo<\/a>, egy olyan olasz szervezet, amely a sz\u00edvbetegs\u00e9gek \u00e1ltal \u00e9rintett csal\u00e1dok tudatoss\u00e1g\u00e1nak n\u00f6vel\u00e9s\u00e9vel \u00e9s t\u00e1mogat\u00e1s\u00e1val foglalkozik.<\/p>\n

Mindk\u00e9t sz\u00f6vets\u00e9g megosztja k\u00fcldet\u00e9s\u00e9t, f\u0151 tev\u00e9kenys\u00e9geit \u00e9s perspekt\u00edv\u00e1it a betegek \u00e9s a kutat\u00f3k k\u00f6z\u00f6tti egy\u00fcttm\u0171k\u00f6d\u00e9ssel, a korai diagn\u00f3zissal, a megel\u0151z\u00e9ssel \u00e9s a tudom\u00e1ny \u00e9s a t\u00e1rsadalom \u00f6sszekapcsol\u00e1s\u00e1val kapcsolatban.<\/p>\n

Az esem\u00e9ny tan\u00favallom\u00e1sokat is tartalmaz betegek<\/strong>, felaj\u00e1nl\u00e1s szem\u00e9lyes \u00e9lm\u00e9nyek<\/strong> a mindennapi \u00e9letr\u0151l az ACM-mel \u00e9s a j\u00f6v\u0151beli kutat\u00e1sok priorit\u00e1saival.<\/p>\n

Ez a webin\u00e1rium lehet\u0151s\u00e9get k\u00edn\u00e1l a kutat\u00e1s \u00e9s a betegek tapasztalatainak \u00f6sszekapcsol\u00e1s\u00e1ra, el\u0151mozd\u00edtva a p\u00e1rbesz\u00e9det \u00e9s a k\u00f6z\u00f6s elk\u00f6telezetts\u00e9get az ell\u00e1t\u00e1s \u00e9s az \u00e9letmin\u0151s\u00e9g jav\u00edt\u00e1sa ir\u00e1nt!<\/p>\n

A webin\u00e1riumra angol nyelven<\/strong>.<\/p>\n

\ud83d\udd17 Kattintson ide, ha fel szeretn\u00e9 fedezni a webin\u00e1rium napirendj\u00e9t, \u00e9s regisztr\u00e1lni szeretne a rendezv\u00e9nyen val\u00f3 r\u00e9szv\u00e9telre:
\n<\/strong>https:\/\/acm-from-patients-perspective.eventbrite.it<\/a>.<\/p>\n

Ne szalassza el a r\u00e9szv\u00e9teli lehet\u0151s\u00e9get!<\/p>\n

#<\/span>IMPACT-projekt<\/a> #<\/span>Webin\u00e1rium <\/a>#<\/span>ACM<\/a> #<\/span>Betegelk\u00f6telezetts\u00e9g<\/a> #<\/span>AdvocacyPatientsCsoportok<\/a> #<\/span>Kutat\u00e1s<\/a> #<\/span>Eg\u00e9szs\u00e9g\u00fcgyi ell\u00e1t\u00e1s<\/a><\/p>\n

Alessandra Rampazzo<\/a>, Universit\u00e0 degli Studi di Padova<\/a>, DiBio \u2013 Dipartimento di Biologia \u2013 Universit\u00e0 di Padova<\/a>, Ruth Biller<\/a>, Sz\u00e1ll\u00e1shelyek La Stella di Lorenzo APS k\u00f6zel\u00e9ben<\/a>, Consorzio Italbiotec<\/a>, Irene Ferri<\/a>, Francesco Tesoro<\/a>, Emanuele Melfitani<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Mentsd meg a d\u00e1tumot! 2025. november 26., szerda \ud83d\udcc5 17:00\u201318:30 | Online, Zoom \u00d6r\u00f6mmel jelentj\u00fck be a k\u00f6zelg\u0151 \u201eACM from the patients\u2019 perspective\u201d webin\u00e1riumot, amelyet az IMPACT EU projekt szervez, \u00e9s amely a betegszervezetek arrhythmogenic cardiomyopathi\u00e1ban (ACM) val\u00f3 szerepv\u00e1llal\u00e1s\u00e1ra \u00e9s egy\u00fcttm\u0171k\u00f6d\u00e9s\u00fck fontoss\u00e1g\u00e1ra \u00f6sszpontos\u00edt |<\/p>","protected":false},"author":3,"featured_media":3979,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[37],"class_list":["post-3978","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","tag-webinar"],"_links":{"self":[{"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/posts\/3978","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/comments?post=3978"}],"version-history":[{"count":1,"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/posts\/3978\/revisions"}],"predecessor-version":[{"id":3980,"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/posts\/3978\/revisions\/3980"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/media\/3979"}],"wp:attachment":[{"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/media?parent=3978"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/categories?post=3978"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/hu\/wp-json\/wp\/v2\/tags?post=3978"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}