{"id":4002,"date":"2025-11-27T12:13:08","date_gmt":"2025-11-27T11:13:08","guid":{"rendered":"https:\/\/impact-acmproject.eu\/?p=4002"},"modified":"2025-11-27T12:18:22","modified_gmt":"2025-11-27T11:18:22","slug":"%e2%9c%94-high-participation-in-the-impact-infoday-for-patients-acm-from-the-patients-perspective","status":"publish","type":"post","link":"https:\/\/impact-acmproject.eu\/fr\/%e2%9c%94-high-participation-in-the-impact-infoday-for-patients-acm-from-the-patients-perspective\/","title":{"rendered":"\u2714 Haute participation \u00e0 la journ\u00e9e d'information IMPACT pour les patients | ACM du point de vue des patients"},"content":{"rendered":"<p>\u00ab \ud83c\udf99\ufe0fNous sommes heureux de vous annoncer que la journ\u00e9e d'information \u00ab L'ACM du point de vue des patients \u00bb s'est d\u00e9roul\u00e9e avec succ\u00e8s le 26 novembre!<\/p>\n<p>L'\u00e9v\u00e9nement a \u00e9t\u00e9 un moment important de sensibilisation sur la cardiomyopathie arythmog\u00e9nique (ACM) et le r\u00f4le cl\u00e9 de la cardiomyopathie arythmog\u00e9nique. <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#Associations de patients<\/strong>.<\/p>\n<p>\ud83d\udc65 <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAADywRh0BK0MwbTPle0VN2oKe_4uAmdlCKxw\" data-guid=\"2\" data-object-urn=\"urn:li:member:1018185245\" data-original-text=\"Ruth Biller\" data-test-ql-mention=\"true\">Ruth Biller<\/a>, pr\u00e9sident de <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#ARVC<\/strong>-Selbsthilfe ouvre la session en donnant un aper\u00e7u de l\u2019ACM ainsi que de la mission et des activit\u00e9s de son organisation.<\/p>\n<p>\ud83e\uddec <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAACGC1zIBpp1kLK6tp7ocrY9FPmcvx3vKCFY\" data-guid=\"3\" data-object-urn=\"urn:li:member:562222898\" data-original-text=\"Alessandra Rampazzo\" data-test-ql-mention=\"true\">Alessandra Rampazzo<\/a>, PI de la <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_company:101023525\" data-guid=\"4\" data-object-urn=\"urn:li:organization:101023525\" data-original-text=\"IMPACT EU project\" data-test-ql-mention=\"true\">Projet IMPACT UE<\/a>, pr\u00e9sente les objectifs du projet et les r\u00e9sultats obtenus jusqu\u2019\u00e0 pr\u00e9sent.<\/p>\n<p>\u2b50 <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAAAB-YHIBBtYBLGqLUu_mWOk-hpuALDUU07I\" data-guid=\"5\" data-object-urn=\"urn:li:member:8282226\" data-original-text=\"Maurizio Fabbri\" data-test-ql-mention=\"true\">Maurizio Fabbri<\/a>, pr\u00e9sident de <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAACVd6ekBw1-AU9UfsMCVx0-enJzKm6jEGHA\" data-guid=\"6\" data-object-urn=\"urn:li:member:626911721\" data-original-text=\"La Stella di Lorenzo APS\" data-test-ql-mention=\"true\">La Stella di Lorenzo APS<\/a>, a partag\u00e9 le r\u00f4le de son association et leur implication dans le <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#BeatTheBeat<\/strong> projet.<\/p>\n<p>\ud83d\udcac Trois membres des deux associations ont \u00e9galement contribu\u00e9 avec des id\u00e9es personnelles, partageant leur exp\u00e9rience personnelle avec l'ACM et l'importance des perspectives ax\u00e9es sur le patient dans la recherche et la sensibilisation.<\/p>\n<p>L'\u00e9v\u00e9nement s'est conclu par une discussion ouverte et engageante entre les intervenants et les participants.<\/p>\n<p>\ud83d\ude4f Un grand merci \u00e0 tous les intervenants et \u00e0 notre public!<\/p>\n<p>Restez \u00e0 l'aff\u00fbt des prochaines journ\u00e9es d'information et des webinaires organis\u00e9s au sein du <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_company:101023525\" data-guid=\"7\" data-object-urn=\"urn:li:organization:101023525\" data-original-text=\"IMPACT EU project\" data-test-ql-mention=\"true\">Projet IMPACT UE<\/a>!<\/p>\n<p><strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#ACM<\/strong> <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#Cardiomyopathie arythmog\u00e9nique<\/strong> <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#Engagement des patients<\/strong> <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#PatientsGroupes de d\u00e9fense des droits<\/strong> <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#Projet IMPACT<\/strong> <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#Horizon Europe<\/strong> <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#BeatTheBeat<\/strong> <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#Associations de patients<\/strong> <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#Sensibilisation<\/strong> <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#Webinaire<\/strong> <strong class=\"ql-hashtag\" data-test-ql-hashtag=\"true\">#Journ\u00e9e d'information<\/strong><\/p>\n<p><a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAACGC1zIBpp1kLK6tp7ocrY9FPmcvx3vKCFY\" data-guid=\"8\" data-object-urn=\"urn:li:member:562222898\" data-original-text=\"Alessandra Rampazzo\" data-test-ql-mention=\"true\">Alessandra Rampazzo<\/a>, <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_company:9180\" data-guid=\"9\" data-object-urn=\"urn:li:fsd_company:9180\" data-original-text=\"Universit\u00e0 degli Studi di Padova\" data-test-ql-mention=\"true\">Universit\u00e0 degli Studi di Padova<\/a>, <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_company:90786242\" data-guid=\"10\" data-object-urn=\"urn:li:organization:90786242\" data-original-text=\"DiBio - Dipartimento di Biologia - UNIPD\" data-test-ql-mention=\"true\">DiBio \u2013 Dipartimento di Biologia \u2013 UNIPD<\/a>, <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAADywRh0BK0MwbTPle0VN2oKe_4uAmdlCKxw\" data-guid=\"11\" data-object-urn=\"urn:li:member:1018185245\" data-original-text=\"Ruth Biller\" data-test-ql-mention=\"true\">Ruth Biller<\/a>, <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAAAB-YHIBBtYBLGqLUu_mWOk-hpuALDUU07I\" data-guid=\"12\" data-object-urn=\"urn:li:member:8282226\" data-original-text=\"Maurizio Fabbri\" data-test-ql-mention=\"true\">Maurizio Fabbri<\/a>, <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAACVd6ekBw1-AU9UfsMCVx0-enJzKm6jEGHA\" data-guid=\"13\" data-object-urn=\"urn:li:member:626911721\" data-original-text=\"La Stella di Lorenzo APS\" data-test-ql-mention=\"true\">La Stella di Lorenzo APS<\/a>, <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAACr5bWwBpj_HZ1K0sJU6dc4VIKF9W-UcGWs\" data-guid=\"14\" data-object-urn=\"urn:li:member:720989548\" data-original-text=\"Irene Ferri\" data-test-ql-mention=\"true\">Irene Ferri<\/a>, <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAAD8KQjkBrlfUZr2F7WuSzMfqOiDvQIp9ybs\" data-guid=\"15\" data-object-urn=\"urn:li:member:1057636921\" data-original-text=\"Emanuele Melfitani\" data-test-ql-mention=\"true\">Emanuele Melfitani<\/a>, <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_profile:ACoAADi1zjMB7BxQzAPBdyzbIRZGUd4B1h6yuRA\" data-guid=\"16\" data-object-urn=\"urn:li:member:951438899\" data-original-text=\"Francesco Tesoro\" data-test-ql-mention=\"true\">Francesco Tesoro<\/a>, <a class=\"ql-mention\" spellcheck=\"false\" href=\"https:\/\/www.linkedin.com\/company\/101023525\/admin\/page-posts\/published\/?share=true#\" data-entity-urn=\"urn:li:fsd_company:1652214\" data-guid=\"17\" data-object-urn=\"urn:li:organization:1652214\" data-original-text=\"Consorzio Italbiotec\" data-test-ql-mention=\"true\">Consorzio Italbiotec<\/a><\/p>\n<p>\ud83d\udd34 Voici l'enregistrement du webinaire:<\/p>\n<p><iframe loading=\"lazy\" src=\"https:\/\/drive.google.com\/file\/d\/1m0kEVExN6nb1PB1sjJOQQ7IAPktkxNDw\/preview\" width=\"640\" height=\"360\"><span data-mce-type=\"bookmark\" style=\"display: inline-block; width: 0px; overflow: hidden; line-height: 0;\" class=\"mce_SELRES_start\"><\/span><\/iframe><\/p>","protected":false},"excerpt":{"rendered":"<p>\u00ab \ud83c\udf99\ufe0fNous sommes heureux de vous annoncer que la journ\u00e9e d'information \u00ab L'ACM du point de vue des patients \u00bb s'est d\u00e9roul\u00e9e avec succ\u00e8s le 26 novembre! L'\u00e9v\u00e9nement a \u00e9t\u00e9 un moment important de sensibilisation sur la cardiomyopathie arythmog\u00e9nique (ACM) et le r\u00f4le cl\u00e9 de la cardiomyopathie arythmog\u00e9nique. #Associations de patients. \ud83d\udc65 Ruth Biller, pr\u00e9sidente de #ARVC-Selbsthilfe ouvre la session avec un aper\u00e7u de l\u2019ACM et de \u2026 de son organisation<\/p>","protected":false},"author":3,"featured_media":4006,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[],"class_list":["post-4002","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events"],"_links":{"self":[{"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/posts\/4002","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/comments?post=4002"}],"version-history":[{"count":4,"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/posts\/4002\/revisions"}],"predecessor-version":[{"id":4005,"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/posts\/4002\/revisions\/4005"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/media\/4006"}],"wp:attachment":[{"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/media?parent=4002"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/categories?post=4002"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/fr\/wp-json\/wp\/v2\/tags?post=4002"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}