\ud83c\udf99\ufe0fWe are pleased to share that the infoday \u201cACM from the patients\u2019 perspective\u201d was successfully held on November 26th!<\/p>\n
The event provided an important moment of awareness-raising on arrhythmogenic cardiomyopathy (ACM) and the key role of #PatientsAssociations<\/strong>.<\/p>\n \ud83d\udc65 Ruth Biller<\/a>, President of #ARVC<\/strong>-Selbsthilfe, opened the session with an overview of ACM and of her organisation\u2019s mission and activities.<\/p>\n \ud83e\uddec Alessandra Rampazzo<\/a>, PI of the IMPACT EU project<\/a>, presented the project\u2019s objectives and the achievements reached so far.<\/p>\n \u2b50 Maurizio Fabbri<\/a>, Chair of La Stella di Lorenzo APS<\/a>, shared the role of his association and their involvement in the #BeatTheBeat<\/strong> project.<\/p>\n \ud83d\udcac Three members from the two associations also contributed with personal insights, sharing their personal experience with ACM and the importance of patient-driven perspectives in research and awareness.<\/p>\n The event concluded with an engaging open discussion among speakers and participants.<\/p>\n \ud83d\ude4f A huge thank you to all speakers and to our audience!<\/p>\n Stay tuned for upcoming infodays and webinars organised within the IMPACT EU project<\/a>!<\/p>\n #ACM<\/strong> #ArrhythmogenicCardiomyopathy<\/strong> #PatientEngagement<\/strong> #PatientsAdvocacyGroups<\/strong> #IMPACTproject<\/strong> #HorizonEurope<\/strong> #BeatTheBeat<\/strong> #PatientAssociations<\/strong> #Awareness<\/strong> #Webinar<\/strong> #Infoday<\/strong><\/p>\n Alessandra Rampazzo<\/a>, Universit\u00e0 degli Studi di Padova<\/a>, DiBio – Dipartimento di Biologia – UNIPD<\/a>, Ruth Biller<\/a>, Maurizio Fabbri<\/a>, La Stella di Lorenzo APS<\/a>, Irene Ferri<\/a>, Emanuele Melfitani<\/a>, Francesco Tesoro<\/a>, Consorzio Italbiotec<\/a><\/p>\n \ud83d\udd34 Here\u2019s the recording of the webinar:<\/p>\n