\ud83c\udf99\ufe0fS pot\u011b\u0161en\u00edm oznamujeme, \u017ee dne 26. listopadu se \u00fasp\u011b\u0161n\u011b uskute\u010dnil informa\u010dn\u00ed den \u201eACM z pohledu pacient\u016f\u201c!<\/p>\n
Akce byla d\u016fle\u017eit\u00fdm momentem zvy\u0161ov\u00e1n\u00ed pov\u011bdom\u00ed o arytmogenn\u00ed kardiomyopatii (ACM) a o kl\u00ed\u010dov\u00e9 \u00faloze #PacientiSdru\u017een\u00ed<\/strong>.<\/p>\n \ud83d\udc65 Ruth Billerov\u00e1<\/a>, p\u0159edseda #ARVC<\/strong>-Selbsthilfe zah\u00e1jila zased\u00e1n\u00ed p\u0159ehledem ACM a posl\u00e1n\u00ed a \u010dinnost\u00ed jej\u00ed organizace.<\/p>\n \ud83e\uddec Alessandra Rampazzoov\u00e1<\/a>, PI ze dne Projekt IMPACT EU<\/a>, p\u0159edstavil c\u00edle projektu a dosa\u017een\u00e9 v\u00fdsledky.<\/p>\n \u2b50 Maurizio Fabbri<\/a>, p\u0159edsedkyn\u011b La Stella di Lorenzo APS<\/a>, sd\u00edlel \u00falohu sv\u00e9ho sdru\u017een\u00ed a jejich zapojen\u00ed do #BeatTheBeat<\/strong> projekt.<\/p>\n \ud83d\udcac T\u0159i \u010dlenov\u00e9 z obou asociac\u00ed tak\u00e9 p\u0159isp\u011bli osobn\u00edmi post\u0159ehy, sd\u00edleli sv\u00e9 osobn\u00ed zku\u0161enosti s ACM a v\u00fdznam pacientem \u0159\u00edzen\u00fdch perspektiv ve v\u00fdzkumu a pov\u011bdom\u00ed.<\/p>\n Akce byla zakon\u010dena poutavou otev\u0159enou diskus\u00ed mezi \u0159e\u010dn\u00edky a \u00fa\u010dastn\u00edky.<\/p>\n \ud83d\ude4f Obrovsk\u00e9 pod\u011bkov\u00e1n\u00ed v\u0161em \u0159e\u010dn\u00edk\u016fm a na\u0161emu publiku!<\/p>\n Z\u016fsta\u0148te nalad\u011bni na nadch\u00e1zej\u00edc\u00ed informa\u010dn\u00ed dny a webin\u00e1\u0159e po\u0159\u00e1dan\u00e9 v r\u00e1mci Projekt IMPACT EU<\/a>!<\/p>\n #ACM<\/strong> #arytmogenn\u00edkardiomyopatie<\/strong> #Zapojen\u00ed pacienta<\/strong> #PacientiAdvocacyGroups<\/strong> #Projekt IMPACT<\/strong> #Horizont Evropa<\/strong> #BeatTheBeat<\/strong> #P\u0159idru\u017een\u00ed pacient\u016f<\/strong> #Informovanost<\/strong> #Webin\u00e1\u0159<\/strong> #Informa\u010dn\u00ed den<\/strong><\/p>\n Alessandra Rampazzoov\u00e1<\/a>, Universit\u00e0 degli Studi di Padova<\/a>, DiBio \u2013 Dipartimento di Biologia \u2013 UNIPD<\/a>, Ruth Billerov\u00e1<\/a>, Maurizio Fabbri<\/a>, La Stella di Lorenzo APS<\/a>, Irene Ferriov\u00e1<\/a>, Emanuele Melfitaniov\u00e1<\/a>, Francesco Tesoro<\/a>, Consorzio Italbiotec<\/a><\/p>\n \ud83d\udd34 Zde je z\u00e1znam webin\u00e1\u0159e:<\/p>\n