{"id":3978,"date":"2025-10-22T10:36:48","date_gmt":"2025-10-22T08:36:48","guid":{"rendered":"https:\/\/impact-acmproject.eu\/?p=3978"},"modified":"2025-10-22T10:36:48","modified_gmt":"2025-10-22T08:36:48","slug":"%f0%9f%93%a2-upcoming-webinar-acm-from-the-patients-perspective","status":"publish","type":"post","link":"https:\/\/impact-acmproject.eu\/cs\/%f0%9f%93%a2-upcoming-webinar-acm-from-the-patients-perspective\/","title":{"rendered":"\ud83d\udce2 Nadch\u00e1zej\u00edc\u00ed webin\u00e1\u0159 | ACM z pohledu pacient\u016f"},"content":{"rendered":"

Zachra\u0148te datum!<\/strong><\/p>\n

\ud83d\udcc5 St\u0159eda 26. listopadu 2025 | 17:00\u201318:30 | Online, Zoom<\/strong><\/p>\n

\"\"<\/p>\n

S pot\u011b\u0161en\u00edm oznamujeme nadch\u00e1zej\u00edc\u00ed webin\u00e1\u0159 \u201eACM z pohledu pacient\u016f<\/strong>\u201c, kterou organizuje Projekt IMPACT EU<\/span><\/a> a zam\u011b\u0159ila se na zapojen\u00ed sdru\u017een\u00ed pacient\u016f do arytmogenn\u00ed kardiomyopatie (ACM)<\/strong> a o v\u00fdznamu jejich spolupr\u00e1ce s v\u011bdeckou obc\u00ed p\u0159i zvy\u0161ov\u00e1n\u00ed pov\u011bdom\u00ed a podpo\u0159e pacient\u016f a rodin.<\/p>\n

Sou\u010d\u00e1st\u00ed p\u0159edn\u00e1\u0161ky bude i p\u0159ehled projektu, kter\u00fd p\u0159edstavil Prof. Alessandra Rampazzoov\u00e1<\/a><\/strong> z\u00a0Universit\u00e0 degli Studi di Padova<\/a>, kter\u00fd bude ilustrovat DOPAD <\/span><\/a>c\u00edle a hlavn\u00ed dosud dosa\u017een\u00e9 v\u00fdsledky.<\/p>\n

Diskuse se z\u00fa\u010dastn\u00ed dr. Ruth Billerov\u00e1<\/a>, p\u0159edsedkyn\u011b ARVC \u2013 Silbsthilfe<\/strong>, n\u011bmeck\u00e1 neziskov\u00e1 organizace zastupuj\u00edc\u00ed pacienty, kter\u00e1 poskytuje informace a komunitn\u00ed podporu jednotlivc\u016fm a rodin\u00e1m s ACM, a Maurizio Fabbri<\/a>, p\u0159edseda La Stella di Lorenzo<\/a>, italsk\u00e1 organizace zab\u00fdvaj\u00edc\u00ed se zvy\u0161ov\u00e1n\u00edm pov\u011bdom\u00ed a podporou rodin posti\u017een\u00fdch srde\u010dn\u00edmi chorobami.<\/p>\n

Ob\u011b sdru\u017een\u00ed budou sd\u00edlet sv\u00e9 posl\u00e1n\u00ed, hlavn\u00ed \u010dinnosti a pohledy na spolupr\u00e1ci mezi pacienty a v\u00fdzkumn\u00fdmi pracovn\u00edky, v\u010dasnou diagnostiku, prevenci a prosazov\u00e1n\u00ed p\u0159i propojov\u00e1n\u00ed v\u011bdy a spole\u010dnosti.<\/p>\n

Sou\u010d\u00e1st\u00ed akce budou i v\u00fdpov\u011bdi z pacienti<\/strong>, nab\u00edzej\u00edc\u00ed osobn\u00ed zku\u0161enosti<\/strong> o ka\u017edodenn\u00edm \u017eivot\u011b s ACM a priorit\u00e1ch budouc\u00edho v\u00fdzkumu.<\/p>\n

Tento webin\u00e1\u0159 p\u0159edstavuje p\u0159\u00edle\u017eitost propojit v\u00fdzkum a zku\u0161enosti pacient\u016f, podpo\u0159it dialog a spole\u010dn\u00fd z\u00e1vazek ke zlep\u0161en\u00ed p\u00e9\u010de a kvality \u017eivota!<\/p>\n

Webin\u00e1\u0159 se bude konat v angli\u010dtin\u011b<\/strong>.<\/p>\n

\ud83d\udd17 Kliknut\u00edm sem zobraz\u00edte program webin\u00e1\u0159e a zaregistrujte se k \u00fa\u010dasti na akci:
\n<\/strong>https:\/\/acm-from-patients-perspective.eventbrite.it<\/a>.<\/p>\n

Nenechte si uj\u00edt p\u0159\u00edle\u017eitost z\u00fa\u010dastnit se!<\/p>\n

#<\/span>Projekt IMPACT<\/a> #<\/span>Webin\u00e1\u0159 <\/a>#<\/span>ACM<\/a> #<\/span>Zapojen\u00ed pacienta<\/a> #<\/span>AdvokaciePacientiSkupiny<\/a> #<\/span>V\u00fdzkum<\/a> #<\/span>Zdravotnictv\u00ed<\/a><\/p>\n

Alessandra Rampazzoov\u00e1<\/a>, Universit\u00e0 degli Studi di Padova<\/a>, DiBio \u2013 Dipartimento di Biologia \u2013 Universit\u00e0 di Padova<\/a>, Ruth Billerov\u00e1<\/a>, La Stella di Lorenzo APS<\/a>, Consorzio Italbiotec<\/a>, Irene Ferriov\u00e1<\/a>, Francesco Tesoro<\/a>, Emanuele Melfitaniov\u00e1<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Zachra\u0148te datum! \ud83d\udcc5 St\u0159eda, 26. listopadu 2025 | 17:00\u201318:30 | Online, Zoom S pot\u011b\u0161en\u00edm oznamujeme nadch\u00e1zej\u00edc\u00ed webin\u00e1\u0159 \u201eACM z pohledu pacient\u016f\u201c, kter\u00fd po\u0159\u00e1d\u00e1 projekt IMPACT EU a kter\u00fd je zam\u011b\u0159en na zapojen\u00ed sdru\u017een\u00ed pacient\u016f do arytmogenn\u00ed kardiomyopatie (ACM) a na v\u00fdznam jejich spolupr\u00e1ce\u2026<\/p>","protected":false},"author":3,"featured_media":3979,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[37],"class_list":["post-3978","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","tag-webinar"],"_links":{"self":[{"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/posts\/3978","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/comments?post=3978"}],"version-history":[{"count":1,"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/posts\/3978\/revisions"}],"predecessor-version":[{"id":3980,"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/posts\/3978\/revisions\/3980"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/media\/3979"}],"wp:attachment":[{"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/media?parent=3978"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/categories?post=3978"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/impact-acmproject.eu\/cs\/wp-json\/wp\/v2\/tags?post=3978"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}